@sdqayl 

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sdqayl

Seeking Advice on Disclosing My RRMS to Family

Hi everyone This is my first post here. I was diagnosed with RRMS in 2023 though I believe I’ve had symptoms for many years prior to my diagnosis. Personally I felt relieved to finally have a diagnosis after years of uncertainty and being medically gaslit. I’m struggling with whether to disclose my diagnosis to my family, particularly my mother. She’s very dependent on me and I’m her only son. I worry that telling her will affect her mental well-being. She even looks through the peephole in the door and can see me struggling to climb our stairs as we live on the second floor with no lift. She has also seen how prone I am to slips, trips and falls and observes my gait pattern. She has even witnessed bladder accidents as I have neurogenic bladder dysfunction and has seen the ways my symptoms affect my daily life. On top of that she is dealing with serious health problems herself and I am focused on being there for her. I can’t completely hide my struggles but I’m apprehensive about sharing the diagnosis to protect her emotional space. She has noticed my difficulties and has told me multiple times that she knows something is wrong with me. So far when I’ve needed to go to A&E due to relapses — such as BPPV, Uhthoff’s phenomenon and bilateral foot drop — I’ve gone alone which I prefer. Someone else with MS kindly shared their perspective with me and it really stuck with me: “I understand why you’ve kept this private, particularly from your family, but I do gently believe that having at least a small support system aware of your diagnosis could be beneficial — especially in the event of an emergency. It would likely be a shock to them at first, but once it’s out in the open, it allows space for understanding, acceptance and support. MS isn’t something you can simply ‘push through’ and you shouldn’t have to navigate it alone.” I’d really appreciate any advice from others on how to approach telling family about an MS diagnosis. Sorry for the long message but thanks in advance for any guidance.
@Michelle_Dangirwa

Hi, I definitely think you should tell. In as much as she dependent you now u also dependant on her. Unfortunately u cant do this alone you also need support. Have u tried going to psychologist who treats people with MS? They help with getting to the how you talk to family about it. The can even help we you tell your family.

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@ClaireVS

I think you should definitely tell your mum. In all likelihood she already realises something is not right and is probably worried it is something even worse. It is difficult telling the family but if you didn't they would be hurt you didn't confide in them. Try to pick your moment when you won't be interrupted by anything so that you can spend as much time as you need & they can ask questions and discuss fully with you. I think you'll be pleasantly surprised by their reaction. All the best - I hope it goes well for you

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