Ocrivus
I'm particularly interested in hearing from people who are on Ocrevus.
How have you found it?
Have you had many infections?
Do you still go on holiday and live a normal life?
How did you find the infusions?
Have you noticed any improvement or slowing of progression?
Were you worried about immune suppression before starting?
Any experiences, positive or negative, would be really appreciated as we're trying to understand the options before our next appointment.
I started Ocrevus in November. No infections, no side effects. For me, I think my condition stay the same, no progression and the MRI (in April 26) showed no new injuries. In may 26 I took the 2nd infusion and 2 weeks later I’ve notice a improvement in my balance and I’m felling really better, better than after the 1st infusion. I think the immune suppression don’t need to be a concern. I live exact the same life I had before, doing all things I want to.
Have been using ocrevus for past 5 years. Side effect sleepy during infusion so i sleep. No complications. This has been good for me. I still live my life, work and travel. Adjust what I do when needed. Eat well, exercise. This condition doesn’t define me…. Been 15 years and I refuse to quit.