@nlrt121791 

Last reply

nlrt121791

Explanation

I feel so alone sometimes. And people without MS don’t get it. Should I have to explain myself when you’ve seen me fall multiple times? No I should not. Does anyone else have this issue? I just feel like people don’t get it. Even though they’ve witnessed how my MS can affect me.
@MindyKissel

You are right. People who don’t have MS don’t understand. I have only been diagnosed for a few weeks and I myself, still don’t get it. I was literally breaking down and crying while I sat on our bed. And my husband was asking what’s wrong. And the more he asked, the more I cried because if I told him the truth. The truth, that I’m crying because I literally lost balance as I was walking, he wouldn’t understand. He even said, “I wish I could I understand, I wish I could feel what you feel. But you have to do your best to explain to me so I can try to understand” 🥰 Don’t feel like you should have to explain yourself everytime. We do the best we can and we are trying

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@squigonometry

Wish I could say something better than "get used to it", but people not getting it is a constant. I've told my wife, "in the same way I understand pain, but will never understand the pain of childbirth, you will never understand the frustration and sometimes horror of not being able to control my own body."