@n111 

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n111

Any SPMS members not on DMT ?

If you are not on DMT how you handle the symptoms and how you feel ? Can you have a normal life ? Please share with me 💜
@Bambi76

I’m SPMS and been off meds for about 1 year. It’s a struggle every day but I always try and keep busy doing what I am able

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@ElianaH

Hi I’ve been off DMT for 12 years. Unfortunately I get a little bit worse each year, hardly see the nurses unless I request. When I read or hear about new treatments, I ask the consultant if possible for me, so far it’s a no go. Baclofen helps, moderate exercise and pain killers plus watch how you do activities, refer to the boom & bust theory 💜

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