Boyfriend doesn’t get it
So my boyfriend and I go to the gym - prior to getting diagnosed, we would be in the hot sauna and then hot tub, it was and still feels so dang good (yes I do get light headed but it’s never to the point of passing out). I’ve been on Rituximab and my infusion is coming up soon (IYKYN). My boyfriend is super worried about my MS all the time, and he controls more than listens to me and what I am trying to do for easing my muscles after working out. He looks everything up online yet he doesn’t listen to what feels good for me. He’s very scared that if I go to the sauna, I’ll have a relapse. He is basing everything off of what he reads but MS is so so so different with everyone. Do you guys also go through this or went through this with your partner when you got diagnosed? I feel like a lab rat sometimes with this and I’m also not thrilled when I’m not being listened to. Ahhh it’s so complicated.
It definitely is complicated and so so different with everyone, you’re absolutely right. Try to advise him to have an open mind without assuming what’s next, remaining positive and helpful. Please don’t let him bring your mindet down into negativity. You got this 💪 🧡
It’s definitely different for everyone and I can understand he just wants you to be safe and happy which is lovely but not so good that you don’t feel heard. If what you say isn’t getting through you could maybe take him to your neuro appointment (I know I get one once a year) not sure if that’s universal but maybe if you take him and ask the neuro if these things are ok which I’m sure they are he may relax a little. A lot of the things on Google strike a lot of fear but it’s just not the case for a lot of us. I have my boyfriend sit in on some of my appointments so he can hear it directly x