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@mollymoo8 

Last reply

mollymoo8

Feeding tubes

Hi all, I’m Molly my mums daughter. She’s had ms for 12 years and unfortunately has now got advanced ms now all ms is different and I’m not writing this to scare or hurt anyone. I would just really like some advice please We’re looking at a rig or peg feeding tube for my mum as she really struggles with choking. We’ve spoken to doctors but they’ve said usually they do it for people who are in the earlier stages of ms I just wondered if anyone had one and can share there experience or give us any advice. It would be very appreciated. I hope whoever’s reading this is having a amazing day, thank you
First posted on the Shift.ms app
5
@ClaireVS
@ClaireVS
 

I can't help I'm afraid but I wish you & your mum all the best & hope you find a solution soon x

4
@Historicus
@Historicus
 

Do you know what she might want? I think many of have thought about our wishes, including quality of live. The prospect of progression is absolutely scary. I am early stages and have started thinking about an advanced directive now that specifically takes quality of life into account and takes the guesswork off my family. I have specifically said no feeding tubes, but it's a personal preference (I was on a PICC line for a few months for a different reason a few years ago and I was miserable.) But others may feel differently, depending on what else they're dealing with. There's an Instagrammer who is on a TPN for intestinal failure and works out and just finished her PhD. If your mom can't communicate, do you have access to a palliative care doctor? They can guide you on the medical side of things. It may be helpful if you are feeling overwhelmed. In the U.S., the patient only needs a critical diagnosis and does not have to be a candidate for hospice. It may also give you access to a social worker who can help with finding local resources.