What is everyone's experience with ocrevus?
Just had my first loading dose of ocrevus yesterday. My ears were hot and itchy. My whole body felt like it was on fire. They had to pause the infusion to give me an asthma treatment, my chest started feeling tight and i was wheezing (im also asthmatic). They had to leave me on oxygen for the remainder of the infusion. Today I feel dead. So freaking exhausted, but I can walk a little better. I dont know if thats from the steroid infusion that I had last week. (Thought i was superwoman started deep cleaning and walking everywhere. I was out of commission for about 4 days)
Just curious what's everyone's reaction to it, was. As well as how are you doing now with it.
How is everyone one doing in general?
First one was the worse, but it does wipe me out for a few days after now. Been on it for four years now
I’ve been diagnosed since Nov 03. I’ve been using Ocrevus for the past 4 yrs… I love it.