What to expect?
I've had MS for 10 years. I was diagnosed with a spinal tap. I've had inconsistent heath care throughout that time. I've never been on any medication. Reason: health insurance, cost, changing locations, and fear. I'm a tough girl, and can't always express the amount of discomfort I'm feeling to doctors or love ones. But, I've been struggling for the last 3 years with extreme facial pain, incapacitating. Followed by psychological issues that I assume is due to pain. The pain is chronic and the dentist,and ENT see nothing wrong. They also deny that this can be MS related. Short sighted in my opinion. I've been waiting for my appointment to see a MS specialist neurologist in the area since May 2025. I'm currently not insured because life happens. With saying that, health care isn't something I can depend on and my focus is on that which I can control, healthy food, meditative practices, and managing my energy. Difficult with a 5 year old, but I digress. The lingering question is what to expect as time goes on, considering my predicament. Is there an obvious path of regression, or is this all unpredictable? Living with fear isn't my MO, but blindness, immobility, ect. Is scary.
How would a dentist know it wasn’t due to MS?? No one completely understands it. Sooo yah I completely disagyeith said dentist .
That’s crazy someone told you that your symptoms aren’t MS related. You could do a simple google search & see that isn’t true. One of the symptoms that got me diagnosed was facial pain. MS can pretty much cause almost any symptom unfortunately. Sounds like you’re already doing a lot of the right things! But I would strongly suggest getting on medication, I was very against big pharma anything until I did the research & saw how much DMTs slow progression. I’m on Tysabri & have virtually 0 side effects. You are not guaranteed any outcome, I know it’s scary but I’ve met tons of older people who are doing great! You got this!! (: