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@megustaplantas 

EditedLast reply

megustaplantas

Does anyone else have a schwannoma/nerve sheath tumor in addition to MS?

I have a small nerve sheath tumor on my cervical spine. I was just diagnosed with both, so still figuring how life with both is going to look/how treatments for one will impact the other. Does anyone else have the MS/nerve sheath tumor combo? How has it impacted you if so?
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@ebmwyo
@ebmwyo
 

Yes, I had three nerve sheath tumors, 2 in my thoracic spine and one in my lumbar spine. These were followed for a couple of years by MRI. I had no symptoms. None of my doctors thought the nerve sheath tumors were related to MS Finally, the two in my thoracic spine got bigger so I had surgery. The main reason for surgery was to make sure they were nerve sheath tumors and nothing else. The surgery unfortunately caused some weakness in my left leg, my right leg being the one affected by MS. I would say let your doctors follow by MRI before you have surgery. If your doctors are fine with calling the tumor a nerve sheath tumor on MRI and don't want a biopsy to confirm, that is great. (Nerve sheath tumors do have a very specific appearance on MRI )Then you are just looking for enlargement or symptoms. You can DM me if you want to talk more