@meanna 

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meanna

Just wondering

How bad is secondary progressive ms? Be cause I feel like I'm going down fast! My left side is getting worse. I'm so scared to start meds because of all the side affects plus I am a heart patient I take alot of heart meds and 2 blood thinners. I really dont think there's much out there that's going to help me control my ms
@TaHob

Hi @meanna. I share your anguish as I too have secondary progressive ms. It does feel like your watching your body shut down but there's nothing you can do about it. I feel for you having other series health conditions to contend with. I am fortunate not to and I do take medication, mainly to help with symptoms. Do you have good support around you? Can you, if it hasn't happened already, ask for a meeting with a specialist from both sides to agree a plan for you?

@msalec

I was diagnosed in 2013 after 11 years of testing.. just last fall the Dr reclassified me as active secondary progressive ms.. I know in my heart I am in a use it or lose it category now.. I feel like my body is reconditioning faster than my peers. I am not going to go out and do marathons or sky dive but force my self to be as active and moving as my body will allow me.. take my breaks to rest and do the best I can. Pt exercises, walking, and supplements have helped to strengthen my body and mange my nerve pain..