1yr from Diagnosis today
Today marks one year from my diagnosis. I have a lot of mixed feelings and definitely emotional. I have since only disclosed to a handful of coworkers my best friend and my immediate family. I have wanted to shout it to the world but at the same time I don’t feel ready. I have had 2 infusions and feel like progression slowed down but I do notice a lot of differences in my body. I’m still learning to know what is “normal” . I’m greatful that I still feel pretty good for the most part. I feel like this is my safe space to vent with people who understand me 🥲
I've told everyone of my diagnosis and I only found out 6 days ago! I think it's important people know so that I get the support I need. I also am very emotional and frightened for the future. Wishing you all the best. Keep your chin up .
Hi both. I remember those feelings when I was first diagnosed. I was scared for my future and how it was going to affect my children (both under 3). But I’m here to tell you, I’ve done ok. 37 years later, I’m still me. I’m still doing things- maybe a bit differently- and my children have both got 2 children of their own. Good luck with your journey. xx