@kellyqt 

Last reply

kellyqt

One day at a time? Everything at once

Hi everyone. I haven't been active for a while and I've posted some pretty emotionally intense things in the past so thank you to everyone that reached out to me. I was diagnosed in July and things have snowballed significantly. I was meant to start Tysabri (even had an appt) but I'm JCV+. I'm going with Ocrevus now. I've been off of work for maybe 4 months? My initial relapse still seems to be going on. My hands burn, are hypersensitive, numb, cramp and ache all at the same time. I can barely walk without getting extreme calf cramps. Depression has also gotten a firm grasp around my throat. Physio wants to install handrails in the bedroom and toilet. It gives me flashbacks of all the care homes I've worked in. I feel frail and like a crinkly old leaf that will fall off the plant any minute. Benefits have been extremely hard to even find and get help with, and soon I will be in financial struggle. I sleep 20hrs at a time. I am not the same person I was yesterday. I've started drinking a lot and taking drugs because I just don't care and I just don't want to associate with my life anymore. I don't have anyone IRL that can support me. I really want to go to the Exeter MS centre but I am extremely scared of the outside now. I don't even know why I'm typing this out
@bruce899260

I went to Spine Institute in Farmington yesterday, Connecticut to see if they could do some with my pain and I refuse narcotics so they wanna give me Flexeril and stuff like that. I didn’t want that so no help at all. I take Ocrevus twice a year now helps me with my right leg, but doesn’t help with the pain. I struggle to walk with a Rollator. It’s like my right leg is dead. Sometimes I don’t know. I heard people that do all natural remedies are doing fine. I never tried it. I think I’m gonna try it.

2
@kellyqt

@bruce899260 I think you should. Please tell me what you decide to take and if it has an effect. I take vitamin d and magnesium. I don't in any way endorse it but I have started taking speed to significantly improve my fatigue.(I get it tested for purity and possible fillers). Again I do not endorse or want to recommend this to anyone. I just felt helpless. Even my flexibility and walking improves when I'm drunk but I know it just just extreme masking of symptoms and will be a big ramification in the near future. I just lost all hope so soon.

1