The unknown
I’m really struggling with not knowing how I’m going to feel further down the line, how my symptoms will be, whether I’ll lose mobility etc. I hate feeling out of control, I research everything I do so I know what to expect, but this is just so unpredictable and Google can’t help me 😅 I wish I could just ask a doctor and they’d tell me exactly where I’ll be at in 5/10 years time so at least I’m not left worrying . It’s really consuming my thoughts
From the way I was told is once you start your dmt how you are is where you’ll stay overall as the dmt is to stops new lesions. I knew someone as a teenager who’s wife had ms badly she couldn’t talk couldn’t move and horrible spasms. When I was first told I got ms that was my first question about if that was what I was gonna become and neurologist told me that about the dmts.
Your research will have shown that modern drugs available such as Ocrevus and Kesimpta divide a 70% reduction in relapses for the first two years and then better results from years three to 10 sometimes 90%. So if you have RMS and get onto a drug swiftly in the next few months then the odds are that in 5 or 10yrs time you will be at where you are now.