I completely understand how you feel. Reading your words felt like you were describing my own days. That constant pressure to “fix” everything, to keep up, to be productive—even when our bodies are clearly asking for rest—can be so heavy. Like you, I often feel guilty for not doing all the things I used to do, or all the things I feel responsible for. It’s hard accepting the “new me,” and honestly, some days I still struggle with that acceptance too. Living with MS (and everything that comes with it) isn’t just physical—it’s emotional and mental. People don’t always see the exhaustion, the pain, or the internal battle, and that can make the guilt even louder. But none of this makes you weak, lazy, or a burden. It means you’re human and navigating something incredibly hard. What I keep reminding myself—and maybe it helps you too—is that rest is not failure. Surviving, adapting, and showing up in whatever way we can that day is progress. Even on pajama days. Even on chair-bound days. Even on days when the only thing we accomplish is breathing and getting through. We may not be who we were before, but we are still here. Still trying. Still worthy. And as frustrating as it is, we must keep going—one moment, one adjustment, one day at a time. You’re not alone in this, and your feelings are valid. Thank you for sharing them so honestly.

I’m definitely going through the same. Weakness and MS is so frustrating, especially when my dominant right side doesn’t do what I wanna do. Sit stand exercises help but stiffness makes life rather challenging. Repetition is what keeps me going; however, falling and the inability to get up on my own is even more frustrating. Little bits of something is truly better than nothing. Stay as positive as possible as through such repetition is the neuroplasticity as our body’s find new routes to allowing us to do what we can.