How did you know your RRMS was SPMS?
I haven’t been getting better since I’ve been diagnosed in April 2023. I’ve had short periods of time in which I felt ok to be up. But for the most part, I spend most of my time recovering from everything I do. Fatigue is my worst symptom, but balance and vision issues follow up with a close 2nd. In October 2024 I was told my treatment seemed to be wearing off sooner than expected & I’ve struggled a bit with Dr.s not understanding me, so I just genuinely want to know if I should mentally prepare myself for more/ new symptoms?
Thanks for reading<3
It’s probably best to ask your neurologist or MS nurse regarding your transition from RRMS to SPMS, as they can make a judgement. I’ve had RRMS for 25 years now and when I ask recently, my neurologist said no it’s still too early to tell. Regards.
On paper I'm still RMS. I feel that 2yrs ago I've transitioned to SP. Consultant won't put in writing yet. To answer your question it's because my scans have been clear for six years now get some of my symptoms are very very slowly getting worse as the years are going by. Since my last relapse in 2019 new symptoms have crept in. To get an understanding of why it happens watch Aaron Bosters video on "The Leaking Pool Model" on YouTube. FYI everybody with RMS gets SPMS, it's just some people have it so mild they don't notice it. (My consultants words not to mine.)