Uncaring
I’m not sure if uncaring is the title I really want for this rant/observation but I started thinking of the years since my diagnosis (2002) my family members even my grown children I don’t think any one of them has really been curious enough to read about my symptoms the things I deal with daily and my mom has been saying this a lot lately “you’re expecting too much from people” am I? Am I having a pity party? Idk why but lately I guess I’ve been more sensitive I never say any of this out loud I keep it in and feel free to be brutally honest I would like to know 😔
I feel the same. Worst bit is being asked what support I want. I feel if I have to tell them I dont want it. After 10years before diagnosis, I feel ppl say your sensitive to ask their own lack of empathy or understanding. We have a right to be sensitive when are body, brain is attacking itself and its out of our control. I dont think we expect too much, just an interest and consideration of our needs and how we must feel.24/7 its not like a broken leg you can see.
Ive definitely learned where i stand with people, alot of people like to think theyre caring and supportive when its usually the opposite.