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@itasarah 

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itasarah

Ellen’s diagnosis

The first thing that happened was my daughter was diagnosed with MS. No one else however that I know of in my family had this diagnosis. She was almost 2O then.Three years later when I was 50+ I had transfer Myelitis.It left me rather numb from my chest to my feet. Within a week or two most of the numbness went away, but permanently left my toes and the balls of my feet permanently numb . I had before that which I didn’t know at the time were MS hugs. I didn’t know what they were. Neither did my internist! It was probably my first MS symptom. So three years after my daughter was diagnosed. I had an MRI of the brain and was diagnosed with MS. That was about 20 odd years ago.
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@itasarah
@itasarah
 

Actually, I think the first symptom I had, but I didn’t know it was at the time, were MS hugs. I remember calling my internist and telling him about it and he said sounded like some kind of muscular spasm, but he really didn’t know that it was a sign of having MS. It was maybe about 27 years ago after which I had a brain MRI and was found to have MS. the MRI was ordered because my daughter at age 20 was diagnosed three years earlier with MS. In all these years, I’ve had no changes in my brain MRI which showed inactive MS lesions. I have not had any particular progression of the disease either. So in that regard, I guess I’m lucky so far. I am now 78. I don’t feel any different now than I did when I first figured out that I had MS. my MRIs done almost yearly of the brain have not changed. This year I think we’re going to try an MRI of the spine which I had done very early on at that time. Two lesions were found in the cervical spine area then. I still walk without aides.