Missed Diagnosis
Can I just vent for a second. I first started complaining of migraines back in 2020. Had a MRI and blood work, and just told I had a vitamin D deficiency. Now flash forward to 2025 several hospital stays with multiple optic neurotitis and loss of feeling in my legs, arms, face, speech and cognitive difficulties and I and diagnosed with MS. However, I just finally got my hands on my MRI from 2020 and please tell me why there were 10 lesions spotted back then and nothing was ever mentioned! I was still running 5ks in 2020 until 2024. Now I can't walk upstairs without help. I am so angry and cry over this. I could've received treatment early on and not be on a struggle.
I had a neurologist for at least 10 years treating my migraines and trigeminal neuralgia. He didn't tell me about the Multiple Sclerosis. He thought I was better off not knowing, not taking DMTs and treating the symptoms. I was going through other health issues separately but it all went together. It was devastating to me when I finally got the diagnosis. I had to learn to read every report from every test they run on me. I hope things get better soon for you.
@Esperanza it has been a hard lesson to learn. I feel so cheated. I struggle so much saying with walking and talking and just 16 months ago, I was totally fine. And 2021 I was only experiencing headaches. 😭 I am so sorry you went through it too.