Palliative Care
So I was diagnosed with RRMS "officially" in August of 2025. In April 2026, the Dr told me we were going to try Truxima. It took a month for the insurance to approve. Sadly, I had an allergic reaction. Then we tried Ocrevus and the same thing happened, an allergic reaction. So it's now July and we were going to try Tysabri but, unfortunately, my immune system is too depleted because of the prior infusions. Although I had an allergic reaction, I had received enough of those meds to deplet my B cells so now I need to wait until my immune system builds up again. In the meantime, I've been hospitalized 5 times because of my flares. My symptoms are worsening. I have Dysphasia and I'm losing my sight in my left eye.
I'm exhausted. My quality of life is sad. I can go on and on about all my symptoms but you guys get it.
My question is, has anyone had Palliative Care? I just want to improve my quality of life and enjoy life with my husband, kids and grandchildren. I also have stage 3 kidney disease and chronic anemia. So, has anyone had that type of care?
Thanks in advance ❤️
