@ClaireVS

That sounds awful - a terrible syndrome to have but maybe that was a different med? It could be this med would be ok for you? Have you spoken of your concern with your doctor? I really hope you are ok.

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@hick004

It was carbamazipine that caused it, had to be hospitalized and it scarred the top half of my body so now in skeptical and afraid about getting my first infusion, waiting to speak with my neurologist but they haven't returned my calls yet. I'm ok I think I'm over the anger as to why this happened, like why do I have this.

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