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@gemma_is_tired 

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gemma_is_tired

Work

What do you all do for work? How does that fit with your MS? Prior to my diagnosis I was working 20 hours a week while also trying to finish my Master’s thesis (I now know why that felt so difficult 🙄). Since diagnosis, I’ve been on a contract pause with work while I try to just get my thesis out of the way. My fatigue baseline has worsened since my last flare and I am finding it difficult to do more than 2-3 hours a day. This is fine for thesis progress, but doesn’t translate well to returning to work in a few months time. Just wondering how others manage the fatigue / work combo.
First posted on the Shift.ms app
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@kateeeeeeeee
@kateeeeeeeee
 

It took me a few years after diagnosis to get back to full time work. I was front line social work but now more in Policy desk work. Boring for sure but less intensive and much safer 🙂

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@ruari
@ruari
 

I’m a freelance video editor for terrestrial TV in the UK. When I got diagnosed last year I was on a contract and I was open about it and they let me finish to contract early but paid me for the week that I got diagnosed even though I had done 1 out of 5 days that week which was really nice of them. The next job I was on was for a repeat client and I told them about my diagnosis and that I would need to work from home as much as possible. They trust me so they were very accomodating. I now try and work with them as much as possible. Very lucky that post Covid working from home is a norm and it works very well for the line of work I do as a long the time I need to edit alone. The job I’m on currently don’t know I have MS and I haven’t felt the need to tell them because I’m managing well by working from home 70% of the time. I think if I had to go in every day I’d struggle. So again very lucky for the flexibility that I have. When I do go in to the edit suite I’ve found I can perform as well as I used to pre diagnosis. Maybe even better strangely enough. Long may it continue. Make hay while the sun shines!

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