I work for a filter company supplying various medical filters around the world for different applications. They do one for sleep Apnea would that describe what your experiencing?

Do you mean CPAP? 
No I don't think I have sleep apnoea.  Well I hope not.  I'm not actually asleep at the time. But feel like I would fall asleep, maybe because I've stopped breathing? Not sure. Sounds strange.
I will mention it to my neuro (1 of them). Have an appointment this week.  Just wanted to check I wasn't being daft and hoping they don't suggest I have anxiety.  I've never had anxiety regarding my health, though it was suggested once in regard to one of my initial symptoms. which was obviously proved to be wrong.

Hi @emlaloula I get this sometimes too. 

It usually happens when i'm really tired too and in bed but not asleep. It does feel like I realise im not breathing but then I think 'well I must be breathing just maybe not consciously aware of it as i'm still here!' I have described it exactly the same way as you - as feeling as though everything is going to stop. It's a terrifying feeling when it happens, it makes me afraid to fall asleep soon after in case it happens when I'm asleep. I've not actually mentioned it to my neuro so have no explanation for what it could be (it's something that happens occasionally rather than al the time and I don't recall it having happened around the time i'm seeing them so never think about it but I probably should make a note for my next appointment, especially now I know it happens to others so could well be MS related rather than just me!but wanted to say you're not alone!

@Traceyp glad I'm not alone too. Oddest feeling.  Last time it happened I was in the staffroom at work. Do you have have to do an exaggerated large breath too? Managed to do it without anybody noticing. Though they may not has said anything if they did. After 2 years they are used to seeing my 'ways'.
Had a look at your profile (as you do)
Seems you too got official diagnosis this year. I'm also going onto Lemtrada as first line treatment. Got offered it day I was given the diagnosis, diagnosis which was expected. Hoping to start by end of the year.
Maybe I should change my profile from not on treatment to Lemtrada so I can be spotted?

@emlaloula yes, I got my diagnosis end of March this year, my diagnosis was completely expected (and because of that an enormous really as at least it meant there were options where there hadn't been before) I had been told since my first relapse/episode of symptoms in November 2014 that they thought it was MS but as I had only had the one episode I didn't meet the diagnostic criteria so they couldn't call it that yet (or do anything about it treatment-wise).

I had my first round of Lemtrada on 15th August and am due to be heading back to work tomorrow. It's taken me slightly longer to recover than I was expecting (was originally only taking the following week off so should have bee back 30th August) but I wasn't ready or strong enough at that point so got signed off a bit longer. So by all means if you have any questions about anything to do with it feel free to message me, I'll send you a friend request. I'm more than happy to share my experience.  

Hi, It happens to me in a quite mild way. deep breath and i'm off again. Checked with cardio that this wasn't 'shortness of breath' due to lack of Oxygen being pumped round. He cant see any reason why. Wonder if its a side effect of the Aubagio  I'm on. Now I know its not just me being weird I'll following it up with my MS Nurse and see if there is anything interesting to add.
Usually only happens to me when I'm fairly sedentary such as at my desk at work or at home reading, Never when there's something 'going on'

I notice it sometimes but like somebody else commented, maybe I was breathing but just didn't realize it?  But other times I have actually stopped and thought "whoops" and then started back up again.  I always attributed it to stress.  My breathing thing is more that occasionally I feel the need to take a deep, deep breath, deep into my lungs.  I don't know why.  I just feel like I need it, then if I try but can't, then I feel like I can't breathe so I try again until I can get that super deep breath completed.  No idea why this happens.  Probably stress.  I fit the "profile" for anxiety but I really don't feel like I'm an anxious person so who knows.  At any rate, I'm still kickin' so I'm going with stress for now.   :) 


Thank you for your replies.  As I said, good to know it's not just me. Whatever it is.

Wow I'm not crazy after all. I just Googled "I forget to breathe" because it happens every day, especially when I'm trying hard to do something, and where do I end up: an MS forum! And yes i have pp too... I'm thinking it must be related. So far i haven't feinted yet, but getting close each time I realize it and gasp deeply. I realize this is an old post but please let me know if you find out anything useful.

@remon sorry for late reply. I mentioned the breathing thing to My MS nurse and a Neuro. Definitely an MS thing in my case.
They listened but didn't bat an eyelid. No clear cause as such. Prob related to MS hug type nonsense. 
I've put it down to what I call #MSbraintrickery 

@renon I take that all back (for now}
I just read through the other messages.
@dom1975 mentioned sleep apnoea. I'm seeing a consultant for Hypertension and he mentioned on my clinic letter that I may need a sleep study because of a score on a test he did.

I'll mention this when I see him next month.

I have the same thing like I can't take full oxygen in my lungs for some reason and its not shortness of breath, can anyone tell me if they got better by doing anything so I live a normal life. I feel like sometimes I will die.

This happens to me all the time but I have never thought anything of it? I can hold my breathe for a long time anyway but I know that this is not like holding your breathe it's the lack of sensation of breathing that you suddenly notice.
I don't suffer from sleep apnoea and I only notice this throughout the day. It's just interesting to find this occurring to others.

I’m so thankful I came across this post from 2 years ago. That’s exactly what it feels like. I never thought to bring it up to my neurologist because I forget about it, but it happens almost every day to me. It’s really scary and I know I don’t have sleep apnea because I’ve done a sleep study and it happens when I’m awake. Please let me know if anyone has any tips for this and if they’ve ever brought it up to their doctor. I start to panic when it happens. Just tried the deep exaggerated breath and not much relief. I just keep telling myself to breathe.

@dom1975 So weird I've had replies to this old post. Guess who's having a sleep study to check for sleep apnoea?
I actually recorded my sleep last few days snd I snort like a pig and sound like I'm coughing and choking. I have no memory of this. My Cardiology doc I see for BP asked my GP to arrange study as my Cardio and Nuero is in a different city. 
It's not till January but I'll let you know what happens. 

Hi @emlaloula forgot about this post lol. Wishing you luck to find out what's going on with your breathing. Seems an awful long time to suffer this problem, but hoping you get to the bottom of it and please let us know how it goes ok

@mlgilber1 I had this problem on and off since I was 7 yrs old now I'm 25 but it's happening again and this time it's giving me panic attacks and agoraphobia because when it happens and I feel like can't take a deep breath I start to panic and then I have to leave everything I'm doing and go back home. It's becomin out of control because I'm starting to avoid certain places and situations. Long story short if it's something functional it would have hurt us in a way or made us faint or something so I guess it's all about mind trickery

@dom1975 yesterday I got diagnosed with moderate Obstructive Sleep Apnoea/Hypopnoea (OSAH)
I should be starting Cpap trial in next few weeks. There was me saying I didn't think I had Sleep Apnoea 🙄

 @emlaloula Thanks for letting me know. I work for GVS filter technology who supply to a company called RESMED. Not that it matters, but I often look at what filters do what just for curiosity. Anyway at least you know now and hopefully the condition can be managed. 

@dom1975 thank you. I've been booked for a group session to learn about the equipment and get set up this Friday. How quick was that!? 

A couple of times in the last week I've had a strange feeling. Like suddenly realising I've stopped breathing. Seems to happen when very fatigued, which makes me feel like my body is going to just stop. Like I'm falling into a kind of drunken state of unconsconsiousnesss.
The breathing is new. The only way I can 'wake' myself and breathe normally again is to take a huge exaggerated breath.
Just wondered if anyone else had experienced something similar.

Forgetting to breathe. What is this?