Nervous
Recently diagnosed and everyone I tell looks at me like I’ve received a death sentence so, I stopped mentioning it. Didn’t mention to many people but the look and gasp they give makes me feel like I’m missing something.
I get dizzy from time to time and have toe and finger tingles. Oh, I also walk crooked lol and sometimes when I take a step it feels like I just walked onto a waterbed! I’ve held on to my husband suddenly after feeling what I imagine an earthquake after shock feels like. No one felt it but me :/
I’m so forgetful (ADHD too)and my word search is becoming more regular. I’m trying to start reading more so I can train my brain. 6 lesions but none on my spine thankfully!
Tonight, I feel muscle spasm on my left chest and under my back ribs.
Idk… I’m scared. I have babies and I’m scared of my future. Of their future. :’(
Good morning lovely, (I’m in the UK) I completely get how you are feeling. I was diagnosed middle of December and it all hit me a few weeks ago and currently off work, just for a couple of weeks, to try and mentally get back on track. My main issues are dizziness, brain fog etc but what got my diagnoses was me trying to find the cause of a leg issue. Always been active and a long distance runner but this past year my right leg just stops working. I no longer run but still walk day to day. But at about 4 miles when hiking/walking with purpose I get spasticity in that leg and it goes on my left occasionally too. My lesions are on my spine tho (fml). I’ve just read your post about deleting the app. I felt like this too with a lot of fb pages and even the ms official site as even when I didn’t want to think about it and was just doom scrolling, posts popped up in my feed and it would be someone’s story about losing mobility and being in a chair within months or having a freak out. It just gets you down. So I came off all social media pages (apart from one which is about hsct and how treatment is going for some) and I only use this app now. I turn my notifications off so if I’m having a day, it’s not in my face. But I have had some great advice from others on here, and some days it’s nice to know I have others in the same boat. I can’t be a MS Warrior and all of that. I’m pissed off. I don’t want this, like everyone else. But I’m starting to get better days and are starting to take control back a little. Please think carefully about meds. Ask for opinions on here, then take the info away to analyse it yourself. Lots of people take meds with no major side effects. The reality is, if you don’t take something to stop future attacks, your symptoms may progress. So as much as you don’t have many symptoms now and are worried the side affects will floor you, you have control to try other meds to stop side effects. You don’t have control to try another symptom 🤷🏼♀️ so please think about it. Especially as you have a young family. You will get through this and you will be there for your kids. Please have faith and stay positive. Remember these apps/forums as good as they are, are also an outlet for those having a bad day. Not many will jump on just to tell you how many good months they’ve had. They only jump on to say, I’m fed up and down. So take everything with a pinch of salt and don’t get dragged down. You’ve got this 💪🏼
Ps. I also have adhd and Tourette’s (again fml) just letting you know so you can appreciate the long ramble above lol. I can’t say anything in one sentence 😂