@edwardkime92 

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edwardkime92

Advice/help needed :)

Hey everyone! I was diagnosed with RR MS in May of this year. Had the CT scans, MRI scans and lumbar puncture. My first relapse lasted 3 and a half months. In the first 3 & a half weeks I was paralysed from the stomach down. My right arm was also affected. Now I cannot feel my right hand properly and my stomach doesn’t work properly anymore. Gradually I’ve been able to walk again with the typical side effects of MS. Im now back at work and scared of losing my jobs as I love what I do. I’ve been out of my relapse now for almost 2 months and have started my Kisempta injections and Pregabalin tablets. In the last two weeks I’ve been getting trigeminal neuralgia and randomly my legs keep giving way and I keep getting dizzy spells and almost blacking out. Has anyone experienced this? My MS team have delayed my next meeting from next month to February and seem impossible to get hold of. I’m worried I’m about to go into another relapse already. Any help would be greatly appreciated! Ed :)
@SM_007

hi, have you got access to MS Nurses? Try the MS Society and MS Trust, and get your GP to reach out to the MS team - good luck

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@edwardkime92

@SM_007 I don’t really have any access to the MS team. I’ve seen them once and that was when I was first diagnosed but they are impossible to get hold of. I spoke to my GP yesterday and they said just get back in touch with the MS team! 🙃