@ducky 

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ducky

Quick onset and progression- starting Tysabri immediately for Xmas

Hi all, In six weeks I’ve grown three more lesions in brain and spine and finally met criteria 🙄 this is all in under 6 months and it’s progressing fast. Lesions (multiple) in left and right brain along with c2+3. I’ve been told they a perm damage now? :( Symptoms are getting harder by the day. Numb in many places. Memorie and words not great. Shaky. Unbalanced. Need to pee lots. Fatigue is bad and I cannot motivate myself to function. I’m one of those people that never stops normally so this is really rattling me. I’m starting Tysabri treatment this week as they said it cannot wait and wanted any advice for a single, self employed mum of two kiddos (both autistic) who has no family support and little friends. Its also peak summer here in Australia. I have no super I can draw, no disability or life insurance and I am in a very hard place I guess. So I have to fight. What worked for you? How can I expect to feel? Advice? Tips? What to look for? Preparation that made life easier? If anyone is in Australia and self employed I would love to hear your tips and tricks too. It’s such a weird feeling… being happy I know what it is… but also devastated. Also if one more person I tell I have MS says “oh I know someone with MS and they are fine” or “try blah blah diet” or “it was probably Covid” to me I may implode. Humans are so weird🤣🙄
@Dnorwood

I’m sorry to hear all you’re going through. The advice that I can give is that I know you do a lot of things try to do things at a pace that is safe for you. I’ve learned that the more that I may over exert myself, the quicker I tend to injure myself. I know we want to do all the things we did before diagnosis, we still can just at a safer pace.

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@ducky

@Dnorwood thank you. This is what I am scared of. My kids have 4-6 therapy appointments every week and I am self employed of which is my only income (and I have a commercial lease and client contracts). So I’m struggling to process how on earth I’ll do that :(