@bubblelove86 

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bubblelove86

I haven’t been diagnosed yet wit ms but my doctor is convinced that once I get lumbar puncture that I have MS

Basically I’ve been battling for years fibromyalgia since before 2014 so I thought that is what I had for years and years been fighting with hospitals n doctors to find out what is going on I have had every symptom of me I have been recently stuck in a flare up over a month now and it’s not getting better .. I’ve tried a lot of things and now it’s to the point where I’m having issues wit my breathing n upper back bad n my whole body is weak mostly it’sY right sided but I’m noticing it’s my left side now too my arms go dead on me to point sometimes I can’t even use my hands n even moving my blankets or changing my bed is way too much and can’t breathe good it’s never been like this but they did a mri of my brain and said I had deynmelation n t2 hyperten n 3 spots n that there small but non specific .. on my subcortial part on my brain and memory has gotten worse my heads pounding like tremors almost type of feeling n my right eye hurts with movement n just painful bothers me n my vision .. n soemtiems my eye droops always happens .. idk how else to explain this but just crazy sensations and I use a walker somedays or cane or I try n push it sometimes without it but latley been way worse my flare ups n lasting longer but i have been waiting on Nureology for while bc time delays in my area . And I can’t go to ER around here bc they never do anything to help me ! So I feel super stuck and defeated and drained n just extreme weakness and this breathing stuff is new for me for sure .. but it just keeps lingering driving me crazy .. I know this is a lot but it m just freaked out bc my swallowing has gotten worse too n my ears feel like under water n ringing sometimes in one ear hearing in and out goes too .. n I can just be laying here n have constant spascity n extreme achy n pain just unreal .. also get electric shocks too hard to explain more what im feeling but I guess im just nervous bc i have been dealing wit this my whole life but in last 2 years got way worse for me .. n i feel like a burden to my family and barley have friends bc no one understands truly how hard this is .. just venting bc i feel just a bit lost .. n ms runs deep on both sides of my family n Parkinson’s . Any advice is appreciate it thanks
@Steve5

Either contact you neurologist or go to the ER. If you are having a flare up they can give steroids to help. Once diagnosed get on a DMT quickly to slow progression. I personally am on Ocrevus which is an infusion every 6 months. There are many options so you will have to find one that works for you. Clean up your diet. Vitamin D3 and B12 daily. Although it may sound crazy exercise. Finally, prayer helps. Pray all your worries and concerns. You will feel better.

5
@bubblelove86

@Steve5 thank you i appreciate it