Has anyone felt alone after you get diagnosed from MS?
I got diagnosed early 2024 with MS due to my migraines they were getting more frequent more hard medication wasn’t working and that’s how they found it and then I had to go for all the other MRIs and a spinal tap and it’s everywhere The doctor says I have both types of MS And ever since then they just put me in a box with my pain with my fatigue with everything like my hair hurts everything from my head to my toes hurt and they don’t wanna do anything. My MS doctor anytime I says that this hurts or this in my body is doing this. He tells me that it’s not MS related and that it’s in my head so I feel defeated hopeless and alone. I tried to go to pain management and they don’t do anything they basically said that the pain that I’m having is something else and it’s not a mess related. They won’t do anything for for pain for spasms for nothing so I’m wanting to see if anybody else has had the same outcome. Please help me to figure it out. He didn’t even tell me what could happen what to look for nothing every visit that I have every six months I tell him all this is sparking up. This is what’s happening. It’s not MS related let’s move on so does anybody else had this issue?
Have you ever been checked for RSD? My niece has it, and her whole body hurts. Sometimes you can’t even touch her. She had a hard time getting anyone to believe her or even check her, but they finally found a doctor that would. It doesn’t hurt to ask. She’s on medication for it and can manage most days.
I thought I had a lot of friends but when I got sick I found that I only had 2.and really that's all need.