I am literally disgusted in my care for my MS. I came off Fingolimod almost four weeks ago. The Cladribine nurses were meant to come out last Wednesday to carry out blood tests but disputed that I didn’t have the correct blood test forms from Addenbrokes. I then had to collaborate with the MS nurse at Addenbrokes who confirmed I did in fact have the correct paperwork. My MS nurse at Addenbrokes then emailed the Cladribine team to ensure they rebook my blood test… one week later no blood test has been rebooked. I’ve made multiple phone calls to Lloyd’s Clinical who say they have no control over the scheduling team with regard to rebooking my blood test. When you come off Fingolimod you are at risk of severe rebound activity. I am at the cusp of danger with it now. My MS nurse at Addenbrokes is now on leave till next Tuesday. I have tried to contact PALS at Addenbrokes now but their advisors were busy. So I’m writing an email instead. I have made an official complaint with Lloyd’s Clinical. I cannot express the distress being left in limbo has caused me. I actually didn’t want Cladribine in the first place and I now feel this is God’s way of showing me it is not the right drug for me. I think I will resume Fingolimod and hope it doesn’t alter the rhythm of my heart whilst I restart, you should be monitored. To say I’m fuming is an absolute understatement. I fight for my life every single day and there is zero way I should be having to fight the system too. It’s appalling what has happened and they have picked the wrong b**** to f*** with. If there’s one thing I was born to do is fight. I have been fighting since I left the birthing canal. Never poke the honey badger AKA me… you will regret it severely.