Ms fatigue and telling people
So I have my ocrevus infusion on Tuesday this week thankfully, and the crap gap this time has hit me hard. Like real hard. My problem is other people. My sister invited me out for coffee this Sunday, and my partner asked if I wanted to go to a big exhibition show outside tomorrow. Yet both people I’ve told how im struggling. Why is no one listening or at least understanding or acknowledging it. I know they mean well, but I feel awful keeping saying no to them again and again. How do you tackle it, and does it work?!
Just out my crap gap and had the same experience. Why can't they hear when we say we are tired or not in a good place! 🤔 😢 😠We are still considering the feelings of others frustrating 😑 They can never understand or they forget. Look up the spoon theory of MS and listen to your body! If you want to go, ok. If not, never feel guilty for listening to your body. Find your happy medium. Mine is doing zero and napping during the day. Or I say sorry maybe another day. No further explanation. 🤗
Take care of yourself. Your health comes first and the people that are ment to be in your life will stick around no matter what. Easier said than done but try not to stress out, this disease will latch onto it