Flare up
Hello
I am a little bit unsure of what to write here as I can see that this question and questions very similar have been asked but I am struggling a little bit and wanted... I'm not sure what, but maybe to not feel alone?
I have been diagnosed since December 2023 and have been incredibly lucky so far on this ms journey and not suffered anything really up until last week. Now I think I'm paying for that run of luck! I have had to take time off work and that's a bit of a new one for me.
I feel absolutely awful but then not so bad for a bit. Well enough that I think everything is back to normal for half a day or so. Then just awful again. I have spoken to my ms nurses and they've just put it down to the weather being a bit warm. I live in the North West of England. It's not that warm....
I think I have feelings of guilt and shame (I've self referred to a talking therapies program) that I'm ill but not like proper ill. I mean it's not always a visible thing or not like I'm vomiting everywhere. I just think I'm struggling to align myself to the fact that I can't do what I used to do.
Thank you for reading this far, if you have any advice or suggestions for something/anything I can do to try and shake myself out of this funk, I'd be eternally grateful.
Have a cosmic day.
Sorry to hear this. I’ve been diagnosed since Feb this year and have been hit with everything possible- weakness, bladder issues, went blind in one eye but as hard it is, I try and stay positive. I refuse to let this get me down and stay around family and friends. You’ve got this 🙂
Hello. Your not alone. We your MS tribe understand. I was diagnosed at 51 9 years ago. I wept for the first time this yr for the person I used to be and the things I used to do. Tears are cleansing. I played tennis from the age of 13 until my late 40’s. I miss playing terribly but have accepted my new reality. It’s ok to feel the myriad of emotions. Just don’t stay in the funk. I have a mental health therapist, I am learning coping skills, boundaries etc, learn your new body. What temperatures work for you and what doesn’t. Change your diet. Try to be as active as possible. The most important thing is to Love yourself. Look in the mirror and say positive affirmations to encourage yourself. 😊