MS Society. Open, honest and transparent?
6 days ago marked 10 years to the day, that my MS was ‘stopped’, after I underwent HSCT. A treatment that the MS Society UK consistently lied to me about and tried to steer me away from, by telling me ‘it was ‘dangerous and that I might die’ Funny how over more recent years, the same MS Society have the treatment detail on their website. Having said that, a lot of Nuerologist still appear to be offering more pharma based methods to handle the condition? If I listened to historic MS Society and even SOME current day Nuero’s, their purposeful lies/ignorance my MS condition would have likely deteriorated over the last decade and I have no idea what condition I would have been in now ? HSCT is only available to a co-hort of sufferers!! It’s important to know that if HSCT works you will not need another pharmaceutical drug or equivalent again, so I imagine their sales figures will drop, to a certain extent?
Please feel free to share this post if you’d like. In fact I would ask that you do! The every day staff and charity workers are amazing and I’m NOT implicating them in the post above. I couldn’t imagine life without them!! I’m pointing my finger at the senior board and decision makers of this once trustworthy, caring and helpful charity!!
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MS is a business gold mine. Ms society don't get me started. HSCT is not for everyone but it definitely has become safer then back in the day.
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