HSCT Patient result videos
MS Society UK - Trustworthy ?
• MS Society UK - Trustworthy ?
• My First hand experience of the MS
Society
The MS Society UK gave me purposeful misleading information about HSCT. On enquiring about the treatment, they said,
'Don't do it; it's dangerous. You might die!" Many neurologists were not supportive of HSCT at that time either?
I underwent HSCT in 2016 and found the treatment to be highly effective.I have not needed a single DMT or similar medication since and my MRIs remain stable. My neurologist has said she believes my MS has stopped.
The MS Society is comprises of many departments and teams. I recognise their efforts, but in my experience, only certain areas are genuinely reliable, honest and truthful. I appreciate everyone offering their time and support, but I do question whether some official communications are truly trustworthy
Well that is a link to a YouTube video featuring a number of patients that I’ve had HSCT. listen to their stories yourself.
https://youtube.com/@matthiasdiedrich2481?si=e7vmTqFyiP9pyWfu

It is dangerous and you might die. It has very serious side effects. The most serious being death. But that hasn’t stopped me asking every time I see a neurologist.