@Hi, I have recently been taken off Ponisimod due to some side effects with my eyes. The MS consultant has suggested either having no treatment or starting on Mavenclad. I've read about it and yes it's seems great taking tablets twice a year for 2 years, but I'm not sure I want any of the side effects the literature states are possible. Can anyone out there offer any advice? What are your thoughts? on Shift.ms

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@Tracy_Cuthbertson

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Hi, I have recently been taken off Ponisimod due to some side effects with my eyes. The MS consultant has suggested either having no treatment or starting on Mavenclad. I've read about it and yes it's seems great taking tablets twice a year for 2 years, but I'm not sure I want any of the side effects the literature states are possible. Can anyone out there offer any advice? What are your thoughts?

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@RC83

You possibly had macular oedema. Can you not push for one of the High Efficacy B Cell blockers which seem to be popular nowadays? All DMTs come with risk and side effects. which of the Mavenclad side effects put you off may I ask?

15 Mar 2025 17:02

@LisaJ45

If you have no treatment u really risk more damage u can’t fix . I totally understand where ur coming from but it’s a double edge sword and stuck between the devil and the deep blue sea isn’t it ? I’m just about to start Kesimpta and In that predicament in my head . But time is brain and I know if I don’t then more damage will occur out of my control . Not everyone gets side effects and just have to hope we don’t . There’s so many options if one dosent work for u there will be others that will . Good luck x

15 Mar 2025 17:09