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@Tdrsj 

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Tdrsj

Long-Termers Advise please

Hi ya. This is a shout out to the Long Termers of MS out there! I was diagnosed about 18 months ago and I guess what I am asking is how fo you actually come to terms with this and not let it consume you all of the time?? I have a family who still very much depend on me, I work full time and run a demanding business. MS pretty much consumes my mind ALL of the time. Even when I am working,it is still there in the back of my mind just eating away at me. I try to act as normal, doing my day to day things, running around after my children and their clubs and schooling, my husband, my family. I try to run my business as I always have i guess I just try to be normal all of the time but I know that the truth is, I am not!! I try to hide my struggles and to be fair, I am quite good at that but I am tired, so, do tired all of the time. MS is just eating me away and I know that I can't carry on like this but I don't know how to change it? Every spare thought is on my MS. Not feeling sorry for myself but how can I be better, how can I do better, how can I just be normal! Am I just really full of self pity? I don't think I am but I dont know how to stop it completely consuming me. I feel like I am drowning. Is this normal? Does it get easier? Sorry for the long rant but noone understands it at all 😢
First posted on the Shift.ms app
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@Bee79
@Bee79
 

I’ve had it ten years and like you it was constantly on my mind, from the moment I woke up and last thing at night. I think mine was the uncertainty of it, if what’s and buts, which looking back is only natural. I can’t remember when it stopped consuming my every thought, but it did, I will never stop thinking about completely, because I sometimes have to plan ahead for things, but it became a lot easier and less scarier. We all reach this point, some more faster then others. You are doing amazing, with your heavy day to day load, but it’s okay to say out loud your struggling and ask for help. It took me a few years to say it but am so glad I did. Hope this helps a little bit x

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@Tdrsj
@Tdrsj
 

@Bee79 thank you ❤️ I hope I reach that point one day, I'm just not there yet but, yes, this helps thank you, i appreciate your words. Good luck with your journey, xx

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