Mobility concerns
Having had the diagnosis of MS in Dec 2018, receiving my first infusion in Nov 2021 only( due to Covid ), My mobility has reduced from being able to walk long distances to now thinking about every step. The ocrevus appears to have slowed the progression. But I don’t know if things will progress again.It will be reassuring to hear of people whose symptoms have also slowed since the treatment. Is there anybody in this group where there has been no noticeable progression for years?
I can honestly say that my walking has been largely the same sensation/same experience for over 10 years. My legs typically get that heavy feeling after walking through 1/2 of a grocery store…then it lasts the rest of the day. I have good strength, but know that I should really on plan ONE trip to ONE store at a time. I am thankful that my mobility hasn’t changed —-but I sure wish I had more energy and wish I could get up and know that I could be active all day! I have to schedule things for the morning…then nap in the afternoon…then have a couple hours in the evening that are OK.
It depends what you mean by progression if you mean symptoms then yes I'm very slowly getting worse year after year. if you mean new lesions then no my MS is dormant touchwood 👉🌳