Superman—for now
The aftermath of releasing the hounds…
I woke up this morning with a sleep score of 92 and a Body Battery of 89. Apparently, I learned absolutely fuck all. 😂
It’s my son’s 4th birthday party, so it’s time to put that battery to the test.
Roughly 239 million seconds since I was diagnosed with RRMS—and I’m still here. Still barking mad. Still charging through the fields with the pack and releasing the bloody hounds whenever I get the chance.
This is why I train.
I can eat what I want—but don’t get me wrong, I don’t live off doughnuts and KitKats. I eat reasonably well; I just don’t follow a specialist MS diet, a rigid food plan, go vegan or cut out dairy.
Yet here I stand: a top-tier, Grade-A, gold-standard MSer. 🥇
Motion is lotion. I can be Batman and potentially save someone’s life. I can scale a wall and save my own. If necessary, I can still kick someone’s arse. I get to look like Superman for a little longer—and, most importantly, I can get on the trampoline and play with my kids.
Right now, I may even be the fittest and strongest MSer ever to live. 😂 But I don’t think I’ll hold that title for long.
I was fortunate. I pushed for a high-efficacy DMT and started Ocrevus within about 90 days of diagnosis—only around 18 months after CD20 treatment had reached the market. Special circumstances helped me access it quickly, giving me the opportunity to minimise some of that early damage.
What was unusual for me is gradually becoming the norm.
There’s an entire cohort of MSers coming through behind us—diagnosed earlier, treated sooner and armed with better medication, better information and better rehabilitation. Some of them will be faster, stronger and fitter than me.
Honestly, I cannot bloody wait.
Until they arrive, I’m taking these hounds as far as they’ll run. I’ll plant the flag out there for the next MSer to find—and then they can pick it up and carry it even further.
MS is invisible, so at a kids’ party I don’t need to dress up as Superman.
I am Superman. 💪🦸♂️🐺
