Hello everyone, I was scrolling on Facebook and seen this pop up. I’m not really sure what I’m hoping to get out of this, maybe some direction or what has and has not worked. This is my story. May Memorial Day weekend of 2024 I started shaking when lifting a bottle of water, loosing my words mid sentence, weakness I couldn’t explain on the right side of my body. I really thought it was low blood sugar issue so I ignored the signs. June I finally went to the doctor and they thought I had a stroke. So I get the CT and MRIs that show I have a Chiari malformation type 1. I freak out thinking I’m going to have to cut my hair off for surgery. I start hyping myself up, looking at hair styles that would look good with a partially shaved head. I was mentally readying myself to be okay with what was going to happen. August The doctor calls me again and says I want to be sure so we need to do another MRI and CT to compare them. So we do them and this time what do we find ……….lesions on my brain. October The doctor says okay so I don’t thing the Chiari is causing your symptoms I think you might have MS. At this point I’m thinking I’m gonna die, I’ve never heard of this or seen anyone with it. I don’t feel bad besides the weakness so what am I going to do, I’m only to 26 years of age I got a good 30 before I’m ready. Everyone in my family is relatively healthy so I have a Total.. meltdown…… she orders a lumbar puncture and it shows I have 3 of 4 bands. November Still don’t know what that means but she said 4 is the indicator and she was just gonna call it and say I have MS. At this point I’m out on generic copaxzone I think. Glatiramir Acetate and the first shot hit like a truck. I felt like Johnny Cash burning ring of fire in my side. I was ready to go 😂. The warning label said might cause discomfort but it didn’t say anything about the burning. So we take our shots and do what we are suppose to do. January I quit my job to finish schooling, it’s rough but my husband carries the work load. I notice my symptoms are gone except for the loosing my words and forgetting things. February I start stressing trying to find a job and pick up vaping again. I pass my state boards life is picking up and going good, I get a job we are good the bills might be behind but we are there. I lost insurance so I had to switch to a new doctor in Kentucky. April 20, 2025-May 1st, 2025 I take my shot then go to bed, I wake up and my right leg is numb, lower stomach and hands, the next day the numbness is worse, and it’s slowing moving up my body. I’m not really paying attention to my body because I can’t feel it. I go to work because I can’t miss, I’m on break and vaping, when my whole body flashes numb. That’s the first indication that’s it’s the vape. I kind of brush it off because I’m thinking that it’s just nicotine buzz. I go out for my lunch break same thing happens the flash of numb at this time. I get a sharp pain on my brain like somebody just stabbed me on my head. I threw the vapes away and start to get feeling in my feet, legs, and 3 of my fingers. But my stomach is still numb and my back. I start doing research and it seems the nicotine can speed up MS in whatever form. Nobody has mentioned that to me or my husband, I’ve smoked cigarettes and vapes for 9 years. I know it’s bad for you but I really didn’t think about it. I honestly feel ill prepared and informed. Treatment options really haven’t been explained or explored with me. I don’t know if I should be on a diet or if that’s even helped, I basically am like a newborn deer. I didn’t know there were different forms of MS until this app asked me which one I was. I started taking vitamin B complex to fix the nerve because Google said my myelin sheath was damage and that’s why I’m numb but who knows. Any and all advice, direction, tips and trick, whatever you have that has helped you let me know. I need this numbness to go away and doctors are basically saying it is what it is