@How do you know that your MS has progressed to SPMS or PPMS? I haven’t had a relapse in over a year, however my daily symptoms have declined, mostly my mobility and fatigue. I shared with my neuro but he seemed unconcerned (verdict is still out on my neuro), and he said that he would keep an eye on it?! I will be getting another round of MRI’S in December but he doesn’t want to see me after that until April? I am current on a DMT-Kesimpta. Should I have a reason to be concerned? on Shift.ms

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How do you know that your MS has progressed to SPMS or PPMS? I haven’t had a relapse in over a year, however my daily symptoms have declined, mostly my mobility and fatigue. I shared with my neuro but he seemed unconcerned (verdict is still out on my neuro), and he said that he would keep an eye on it?! I will be getting another round of MRI’S in December but he doesn’t want to see me after that until April? I am current on a DMT-Kesimpta. Should I have a reason to be concerned?

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@chefmyerlemon

I’m sorry you are going through this. Symtoms can increase without new lesions. It does sound like a different neuro would be better. You deserve a neuro that takes your concerns seriously and sees you promptly. Is your neuro an MS specialist? When did you start Kesimpta? I don’t think you need to be too concerned and hopefully your upcoming MRI is stable.

14 Nov 2025 15:33

@deano

I only found out I had moved to SPMS when my consultant moved me to a new treatment, I googled the drug like he told me to ,and drug was for SPMS, I did confirm with MS nurse later. This was after I had my yearly MRI I knew I had progressed as my symptoms never went away , and my mobility was getting worse. Good luck

14 Nov 2025 17:22