I am new to the group and wanted to share something
Good Morning All,
I have been really struggling lately with feeling unwell daily and battling daily life.
I find it really hard to get people to understand and get a lot of comments that are really.. annoying. So I sat and wrote the below. I hope no one minds me sharing it.
Sam’s letter to MS♥️
(Multiple Sclerosis)
Another day, another symptom. Another day at work, another day of what now’s and here we go agains….
The ‘how are you’s?’ that mean nothing… you finish your sentence and can hear the bell clanging in their head that they neither care or are interested in your long winded response.
People thinking ‘I thought it was her Brain that was the problem, not her aches, pains, stiffness, fatigue or, or, or……
The shrugs, the disinterest, the glazed look in their eyes
The look of pity or confusion you get every time you tell them you’re still unwell
‘Where is this illness, this disease you have… I don’t understand it!
‘You don’t look unwell’ as you stick another smile on your tired face to hide your sadness! And discomfort!
I ask myself,
‘Am I really ill?’ that tricky question that runs through my head occasionally and I’m sure through the brains of those around me as i get up and do it all again tomorrow. Another example of this disease making me second guess myself, blows my mind and makes me question my own sanity…
Sometimes the realities of daily living can be as exhausting as the disease itself… but only loved ones, forever friends, fellow fighters will ever understand! For them I’m forever grateful. 🧡
Well said! I felt the same this past month(1 month since I got diagnosed) I feel like nobody will ever understand MS unless they experience it themselves. Sending a big hug xoxo
@jah14 💯 they try bless them but it’s complicated for even us to understand never mind them I guess.