@Robs79 

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Robs79

People who don’t understand

Hey all, I have become more and more frustrated with loved ones in the family who seem to forget I have MS and how things have changed so much with it too. My memory has got worse and worse and I have to repeat myself as never sure if have already sparked up a topic or conversation but then get shot down and told “You told me this 4 times already or I just told you this a minute ago”. This gets me anonyed as I can’t help being like this and seem to be getting worse and worse. Even with a 3 hour memory assessment at Kings in London a few months back told me how bad I am at remembering things with short term memory. My brain would shut down and I was unable to talk anymore. Anyone else have that and feel taken for granted from what I did for the family for a long time now. Need more support and care and attention than scolding like being told off like a child. Anyway thanks and sorry for the rant as needed somewhere neutral to get it off my chest
@applejacks

I’m worse, I’m more upset with my family because they think I can get cured by eating right or going the holistic route. I try my best to eat right, work out & be active, but some days I’m struggling & I feel like I can’t be open about it because I don’t want them on me 24/7 so I rather suffer without help. I just don’t want anyone to pity me. I don’t know, might be an ego thing.

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@msalec

Rant and vent away.. your not alone. It’s good to get it off your chest.. my extended family treats me like I cannot do anything because of the ms and my young adult children just expect me to keep doing everything around the house and yard then wonder why I am too tired to do stuff with them..