Trigems
I suffer from this awful 'want to kill myself' off the scale painful disease & my neurology appt has been put back from Oct to Dec. I feel she really doesn't care or understand the severity of what I'm going through. I know her patient list contains people on death's door but when you have the 'suicide disease' you are in that place too.Does anyone else feel that their neuologist is just in it for the money 🤨
OMG it's horrible and, I get the impression that unless you suffer with it people don't get it. Basically they can't really help us straight away. I'm on a regular dose of Amitriptyline and that calms it for me. I've tried Carbamezepine but that just ruined me, heavy arms/legs etc. Ask about being considered by Maxio Facial...not sure if they can do an op to basically paralyse or cut the nerve!!
Omg I developed trigeminal neuralgia suddenly 3 years ago and it was honestly the first time I considered that death would be easier than dealing with that level of pain. I took so many painkillers I almost developed a stomach ulcers because I was told to take paracetamol and ibuprofen to help which obviously did not even start scratching the pain. I could barely talk and only ate soft foods. It was hands up the worst thing I’ve had to deal thanks to MS.