Offloading - The diagnosis process and keeping up with life
Hi guys, here with my first post and just needing to get some things off my chest as I'm struggling.
Background is that I am newly diagnosed but not yet on DMT. Last summer had a bout of optic neuritis, and MRI results in January showed 2 lesions. I've since had two appointments with a neurologist and discussed treatment options (limited due to the fact that husband and I are hoping to start a family over the next few years). Tomorrow I have an MRI for brain and spine to see how it's progressed since last MRI.
I also presented with a new symptom 2 weeks ago - bladder control issue during an exercise class.
Up until that new symptom I'd been keeping it together pretty well, I think. Generally I'm a positive person and was just counting my lucky stars that I'd be soon on medication that would "sort me out". But that new symptom has really affected me mentally, as I think before I'd been thinking of my MS as a benign thing, whereas this has reminded me it's actively happening inside me.
I'm under a bit of pressure at work as I'm on a secondment, trying to make it permanent as it's a great step up in my career. We're in the process of buying a house and I'm selling my flat. Seeing friends and family, exercising, all that good stuff - but it feels like my mind is at maximum capacity. I attend work meetings but feel like I'm too slow to tune into what's being discussed because there's so much other stuff swirling around my mind.
The last few days I've been crying a lot. This bladder control incident has really thrown me for a loop. The future is so uncertain. How do you guys cope? What can I do to feel normal again? :(
Let yourself go through the emotions, it is part of the journey. Most symptoms have a solution, and some can mentally mess with you, as you start accepting that you physically are not the same person anymore. That being said, put yourself first and hang in there~ Make a list of ALL you have to do and prioritize, you don’t have to het everything done at the same time ☺️ best of luck to you!
@rfau12 *get* You don’t have to GET …