@Maggie12 

Edited

Maggie12

How to nurture a marriage with MS?

I have a really supportive husband. We've been together almost 20yrs and still in love, but MS is becoming a third wheel in our relationship, and I'm struggling to find support for either of us... I'd really appreciate advice from anyone else navigating this. We want to keep our relationship strong and that spark present. In our late thirties now, and I was diagnosed mid 30s after a severe relapse that was life changing. We never dreamed in this stage of our lives, focusing on careers and raising a young family, that our lives would be devastated like this. I was previously fit and healthy, but after that relapse I didn't recover much and my MS is the point where I have significant limitations. I deeply miss being fully independent as a person, wife, and mother and having to miss out on so much. MS has meant giving up a successful and much loved career so I feel awful about being financially dependent on spouse/PIP too. In our home I focus on being primary parent and he focuses on being the financial provider. Personally, I'm starting to feel like a burden and full of guilt because I want to be able to do more on all fronts but the MS has limited so much in every area of life. My husband has admitted to starting to feel the strain and isn't in a good place. As someone who is protective/a fixer, he's struggling with the fact he can't fix this. And he's naturally worried about slipping into being a carer, not a husband. We don't have a village to speak of, so we rely on the two of us and any paid help - cleaner, dog walker, handyman, etc - that we need. He's seeking the help of a therapist but for me... I just feel like although it's not my fault I have MS (and he would never blame me for it), and try so hard to stay as well as I can, this problem is my fault and I can't fix it. Like I say. I feel like a burden. And that's really disheartening. And I'm worried for our future, the uncertainty... I don't want a carer instead of a husband either. Thank you so much anyone for resding and any advice you can offer. I think I need some support to build self-esteem and self-worth so I don't feel like a liability of a person, and to knkw that there are ways for a marriage to stay wholesome despite MS.