Just me?
Oh my gosh!! I can’t be the only one that does everything for everyone.. handles all my crap and a single mom on top of it alll! I hold myself together most days without lashing out and yelling.. partly meditation that has helped. BUT RIGHT NOW!!! I FEEL ON THE INSIDE MY BLOOD BOLING OVER!
Another MS friend said I put on a good act of “I’m great” and when I’m really not .. it’s like people are .. ooooh yea.. that’s right you have MS! Wtf!? I have come a long way yes.. I’m not putting my entire story here but just know.. for 5 years at one point in this MS journey I did almost nothing.. nothing for myself.. no job just trying to survive relaspe after relaspe. Now pass few years I’ve been “better” it’s like everyone forgets! I am going the 31st for another MRI of spine to confirm newer lesions as my Dr. suspects. I may have to pick a new DMT.
I know I know… stress doesn’t help.. this is usually normal stress of life.. hasn’t effected me like that. I feel now.. I’m over stimulated.
Prayers and good thoughts appreciated!
🧡🧡🧡🧡🧡🧡🧡🧡🧡
Currently on a high dose of steroids for the next 8 days, I fully understand the overwhelm! During the pandemic I started eating a lot better and walking, lifting some weights, and I ended up loosing 100 pounds. I have been able to get a bunch more done, and I was doing great though Easter, and then my system started crashing into a flare. Big run around with all my medical teams, so I ended up firing all of them, and got a new GP, and they are going to find a new neurologist. It is so frustrating hitting those “brick walls” right when you feel like you’re doing great for yourself. I hope you find balance, soon!