Just want to vent really as It’s all so new and I have no one to relate to! My story starts with Lhermitte’s sign out of the blue from the 1st September 2024, it was initially so intense and every time I looked down. I also noticed deteriorating vision at the same time which lead to a stronger glasses prescription 🤓 I went to the gp with the lhermittes after 6 weeks as it was bizzare and not easing, I was then asked sooo many questions which revealed I have been living with a fair amount of MS symptoms. The last few weeks my Lhermitte’s sign has eased a lot and it’s only noticeable when I’m hot, like when I wake up in the morning or am wearing too many layers and exercising! This prompted an MRI referral, I had this done without contrast of the brain and spinal cord last week. The results have yeilded the diagnosis in the title “demylenation disease of the cns” my Gp said I have multiple lesions on the brain but the spinal cord is “clear” (I’m sceptical of this because of the lhermittes being my main sign!). Now I wait in limbo for neurology appointment which should be within 21 weeks 🤪! 🎢