Denied DMT
I live in the north west england UK and I was diagnosed with RRMS in 2022. Since then I have been denied DMTs despite requesting every time I see my Nuerologist. Since diagnosis I have decorated ALOT I have had quite a few attacks (each has gave me a lovely new symptom). But when ever I see my neurologist or speak to my MS nurse they dismiss me and say we'll we cant see any activity we wouldn't expect. They allways try to push me down the council in route. I am not depressed I am ANGRY. I read so much about how essential DMTs are to stop detoriation. I see people in the UK with CIS getting DMT that are no where near as advanced as my MS yet my MS team just want to leave me getting worse. Has anyone else had this experience In the UK? I keep getting told I shouldn't change my neurologist because he is the most likely to prescribe. I am so sick of the NHS now I am basically told im not trying hard enough so I try harder when I try harder they tell me you dont seem like your that bad you look well. To this I want to scream. I am in a lose lose situation I am so tired of fighting to appear normal and then having to fight to make my MS team believe me. They also frequently tell me that the symptoms im describing are not usually found in MS so I Google and uou guessed it they are. They swore blind that bladder issues were never a symptom of MS that is just one example. Sorry for the big rant I just want to know if anyone else is experiencing this and if its worth trying to get a new Nuerologist.
I would suggest getting in touch with the MS Society - they will be able to help you I'm sure. But it sounds like your neurologist is not an MS specialist? You have been treated badly in my opinion.
I would say time to get a new neurologist... PALS might be helpful to contact.