Newbie and scared
Hi everyone . A total ms newbie here as I was only diagnosed on Wednesday this week and what a bomb that was dropped on me seeing as 6 months earlier I was told I didn’t have it .
But another mri and a visual evoke done which revealed I’d had my first episode of optic neuritis ( back in June ) and 2 new lesions compared to a previous mri last yr soo boom you have ms . No idea which kind , I have absolutely no symptoms bar my eye going funny back in June which promoted the referal , but all normal now . The neurologist said the ms is really mild and I’m in a good position that I have no symptoms so treatment will keep me this way . I can’t lie I am absolutely a mess with the anxiety and totally in denial and even thinking nah he’s got it wrong I’m ok . The next step is I’m waiting for a ms nurse to contact me . . I haven’t spoken to any ms nurse yet but have been good old googling the treatments avail and tbh they all scare me to death with the side effects . I’ve read ocrevus highers your risk of malignancies and breast cancer is this true . ?? The other option I’ve circled is kesempta bur that has the virus thing attached as a side effect jvc is it ? God I’m so scared , have no idea what to expect and right now can only envision myself crippled or ill from medication side effects . Going from perfectly healthy to a compromised immune system due to drugs . I can’t look for the positives . Shock ? Denial ? And a definitely scared nearly 45 yr old who has just been dropped a bomb and thinks her life is over .
Lots of love
Thanks for reading
Bless you found out September I am 60 waiting for medication so scared
It is a really scary thing to read side effects. All medication carries risks, even generic paracetamol! I think it’s important to seriously consider what medication you can see fitting around your life. I switched to infusions of Tysabri in 2007 and that was brilliant for me because I met so many people going through exactly what I was. I entered the community and made some real friends. We are all here for you lovely x Good luck xx