Anyone please give me positive stories I’m loosing hope
I’m loosing hope I’m crying non stop everyday I can’t take it anymore. I can’t. I can’t. I can’t. I don’t have Ms because I can’t. My neurologist had to lying, I know he did when he said I have Ms. I want to be normal, I am normal I don’t have Ms.. I’m going on ocrevus soon but I genuinely can’t. Because I can’t have Ms it’s not possible I had my first “relapse” at 17. I can’t have it. There’s no way I don’t believe it. It has to be neuropathy right? Neuropathy can cause tingling when it’s not right? Neuropathy yeah. It’s that it just can’t be Ms. I used to fear Ms when I was 14, Ms was my biggest fear. It felt like something I was scared of but never got. It’s not possible for me to get it. I’m on the floor crying and vomiting. I can’t take my symptoms anymore. I pray for the numbness and tingling to stop I pray. Why the hell do I have lesions in my brain and probably spine(didn’t do a spinal tap just MRI). There has to be another reason. No. No. I can’t have Ms. I’m crying. I can’t. I’m spiraling. Why me? Why me?
I got diagnosed at 15 and felt the exact same I was very angry and kept fighting my ms so hard. I understand the feeling of being so young and having your ‘normal’ life being ripped away from you but I promise you you come to terms with it. Ms is a boulder on your back when you first get diagnosed but you start to chip away at it when you take it easy on yourself. What also helped me was talking to a neuropsychologist who specialises in ms it was so rewarding finding out it’s not just in my head. You’ve got this
You are not alone in feeling this way. My first relapse was in 2015, tingling and numbness waist down and I was diagnosed in 2019 after my second relapse in 2018, optic neuritis (went blind in left eye). To this day I don’t think it has fully sunk in, the idea that I have MS. I struggle with the thought daily, but I think it does get a little bit easier as the day goes by. No you won’t be “normal” and that is okay, who wants to be “normal” anyway, that’s boring. Having a good network helps, people you can talk to and who understand your needs. Take it a day at a time don’t think too much about how you’ll be 5 years from now, cos you don’t know. Just concentrate on today. You got this. You are amazing. Stay strong!!