Anyone have crohns/ colitis as well as MS?
I got diagnosed with ulcerative colitis in 2019, after years of battling with flares it’s now managed well with an injection for Ustekinumab. I’ve been in remission for over a year with little symptoms. I then got diagnosed with MS in September last year and have been told there are limited DMTs available to me because of my colitis. I’m waiting to be diagnosed with what type of ms I have but they have strong suspicion it is PPMS which if so the DMT wouldn’t be offered as it’s bad for colitis.
I find this so upsetting and struggling to come to terms with it all.
Any advice is greatly appreciated.
Yes, diagnosed with Ulcerative Colitis about 17 years ago,and MS a year and a half ago. Had to come off Humira injections upon diagnosis, started Ocrevus knowing it could be problematic, slight flare of UC so on 6-mp now but not the best Gastroenterologists. The flare up could have possibly been prevented by swapping me to an alternative drug at the start, but the NHS works in strange ways and I got lost in the system for monitoring. Had I been swapped for something that wouldn't have effected my MS at the start, than the flare up of UC could have possibly been avoided.
@youngatheart how are you finding ocrevus? It’s a hard thing to decide between two diseases being worse than the other but I’m hoping they’ll give me the option of it comes to it. If DMT slows progression then I’m all for that! I’ve tried several different medications for UC I had bad reaction to Azathioprine and anaphylaxis shock with inflixamab 😭 finally get to a point where I’m “well” and get diagnosed with MS. Isn’t life fun! Wishing you well. Thank you for responding