@JNicoES 

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JNicoES

Started Kesimpta yesterday (long winded and not upbeat)

I don't really have anyone to talk to about this but I started Kesimpta yesterday and it was my third day of uni (three hours from home) and my parents came to spend the day and drop off some things but the moment I got back to my accomodation it really hit me and it was like the worst flu I've never had. And I think I'm just sad because there's no one around. All my flatmates knew eachother for years before moving in, none of them talk to me. None of my friends are with me and the people I've just met I barely know. I can't find the energy to make myself hot food or drink because I don't even have a kettle. I can't leave my room because I can't stand that I'll be seen and ignored or avoided. I can't even open my window because I was too cold. Last night I couldn't warm up and I thought I wouldn't make it through the night (I was a bit delirious. I really hope that this doesn't get taken down or anything. I know it will get better than this and I know my body will get used to it but I also know that no one I know will actually understand. Does anyone else relate to any of this? I know it's very specific but I'm feeling a little alone. Thanks xx
@Gtr33B

Hi Nico, sorry to hear you're feeling this way. It'll get better in time I'm sure. You're in the right place. We're all here to help each other :) You can add me and give me a shout anytime you need a chat etc. Keep ya head up and keep smiling 🙂

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@vleonte

@JNicoES...sorry for the way you feel!!! Kesimpta is a highly effective DMT after all. Everyone reacts differently to the medication because we are unique. I was part of the study to launch Ofatumumab to the market. Although it kept me relapse free during the study, I had to interrupt it because of being too JC positive - PML fears. You did great considering this channel as an ally because we all are fighting the same enemy - MS. Please hydrate (water + pynch of Hymalayan salt) well. Minimize sugar intake because it contributes to the inflammation. Also up your Vit. D3 intake - 5,000IU minimum, Vit B12, Omega 3, Zync. Good Luck!!!

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